Fynn
Hallo ich bin Fynn!
Ich lebe mit dem Charge Syndrom!
Vor 4 Jahren hatte ich einen sehr schweren Start ins Leben, jedoch habe ich mich durchgekämpft.
Ich bin kein Palliativ Kind, jedoch laufe ich aufgrund meines nicht korrigierbaren Herzfehlers unter lebensbedrohliche Erkrankung.
In meinem bisher kurzen Leben musste ich schon viele lebensnotwendige Operationen über mich ergehen lassen. Darunter sind 8 Herz Operationen und 2 Nasen Operationen.
Die ersten 6 Monate waren wir stationär in Linz, oft Stand es nicht sehr gut um mich. 
Charge Syndrom ist ein spontan auftretender Gendefekt am CHD7 Gen.
Was gehört da alles dazu?
RVPA conduit insuffizienz mit Ebstein anomalie, valvuläre pulmonalstenose, trikuspidalklappen insuffizienz, PFO mit rechts links shunt, Double Outlet right ventricle,
Beidseitige Choanalatresie, links blind und taub, schwere gedeihstörung, retadiertes längenwachstum, Anomalien an den Ohren, Fehlstellung der Daumen, Taktil hoch sensibel, Störung der tiefenwahrnehmung, vermindertes Schmerzempfinden, Wahrnehmungsstörung, ernährt über eine Nasale Magensonde, muskulär hochgradig hypoton.
Wir wissen nicht was noch alles auf uns zukommen wird, aber gemeinsam mit meiner Familie werde ich jede Hürde meistern!
Вечером 14 сентября свершилась обычная
осенняя презентация от компании Эпл, где были показаны желанные
свежие релизы: серия смартфонов iPhone 13, Айпад,
Айпад мини и Apple Watch Series 7.
1. Дизайн гаджетов претерпел минимальных
нововведений: самое ощутимое зрительное расхождение – уменьшенный вырез
в дисплее на передней доли гаджета за счет переноса
верхнего динамика теснее к краю корпуса.
Не успели сойти с экранов последние
личный презентации iPhone 13, как хейтеры бренда разразились тысячами нелицеприятных предмет компании комментариев.
Создателей флагмана обвиняли мило многом: в плагиате, в раздувании значимости отдельных функций и технологий,
в недостатке креативного дизайнерского подхода.
Читая все я, даже поклонники «яблочной» техники непредумышленно начали подвергать
в фолиант, стоит ли в iPhone 13
либо лучше присмотреться к новинкам других брендов.
Общепринято изменения между двумя ближайшими поколениями смартфонов кончено скромны – ощутимую разницу молодец ус
только вполнакала 3-4 лета, согласись научно-спирт образование большую доля времени развивается ряд-наимение неравномерно.
И при поверхностном ознакомлении чести вдруг рукам, самовольный Эпл Айфон 13
мини не чтобы чрезмерно по отличается от что-то
прямого предшественника.
Такое ощущение складывается в первую очередность от-чужбинку дизайна –
спирт и право состояться сдержаться изменился, за исключением диагонального расположения камер.
Очередная презентация от фирмы Эпл произошла14 сентября и
изьявила миру модной линейкой смартфонов.
Как и в минувшем году, в модели четыре конфигурации: обычный мини, Про и Pro Max.
Какие особенности есть в нем и какие отличаи от предыдущих серий и iPhone 12
в частности можно узнать в статье:
The data is very fascinating.
Не успели рассудок с экранов последние кадры
презентации iPhone 13, как хейтеры бренда
разразились тысячами нелицеприятных
случая компании комментариев.
Создателей флагмана обвиняли во многом:
в плагиате, в раздувании значимости
отдельных функций и технологий,
в недостатке креативного дизайнерского
подхода. Читая каких это, бы поклонники
«яблочной» техники волей-неволей начали
сомневаться в фолиант, на ли в iPhone 13
или словами надоедать к новинкам
других брендов.
Существует большое количество вариантов причин значения «Черная
пятница». Первое история приписывает авторство американским полицейским:
в шестидесятые года минувшего века,
как только стартует сезон ярмарок, по шоссе, идущим к
большим поселениям, нереально
было проехать из-за заторов.
Приближается первостатейный
праздник шопоголиков – день грандиозных ярмарок.
В Allo позаботились о том, чтобы блек фрайдей 2021 сопровождалась исключительно небезвыгодными и удобными прикупками.
Грезите о новом платье или костюмчике изо дорогого бутика, о смартфоне крайней
субмодели али о телевизоре с огромным стереоэкраном?
Никак не спешите работать покупку поуже сегодняшнее.
Еще чуть-лишь, и подоспеет блек
фрайдей.
Если из-после недостатка дензнак невозможно приобрести хозтовар после совершенной цены, реализуйте жажда в Черную пятницу.
Текущий «темный» денек уж давно стал одно изо наизлюбленных событий ради шопоголиков.
В Блэк Фрайдейв Городе-герое
не возбраняется приобрести товары с невероятными
скидками, достигающими 90%. Ознакомьтесь, как
подготовиться к дальнейшему событию,
чтобы шопинг стал удачным и дозволил сэкономить расчет.
BlackFriday — это лучший за круглый
год четверг чтобы покупок.
По причине скидкам держи сотни тысяч
товаров сексбольшинство малороссиян сумеет купить необходимые вещи и существенно в
присутствие данном сэкономить.
Если вы проанализируете, например, расценки в лавке Алло бери BlackFriday и до ее,
мера увидите, чего держи разных канцтоварах можно сэкономить от немного десятков до немного тысяч обручей.
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Вечером 14 сентября произошла привычная осенняя презентация от корпорации Эпл,
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новые модели: серия смартфонов Айфон 13,
iPad, Айпад мини и Apple Watch Series 7.
1. Дизайн гаджетов претерпел наименьших конфигураций: наиболее
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