Fynn
Hallo ich bin Fynn!
Ich lebe mit dem Charge Syndrom!
Vor 4 Jahren hatte ich einen sehr schweren Start ins Leben, jedoch habe ich mich durchgekämpft.
Ich bin kein Palliativ Kind, jedoch laufe ich aufgrund meines nicht korrigierbaren Herzfehlers unter lebensbedrohliche Erkrankung.
In meinem bisher kurzen Leben musste ich schon viele lebensnotwendige Operationen über mich ergehen lassen. Darunter sind 8 Herz Operationen und 2 Nasen Operationen.
Die ersten 6 Monate waren wir stationär in Linz, oft Stand es nicht sehr gut um mich. 
Charge Syndrom ist ein spontan auftretender Gendefekt am CHD7 Gen.
Was gehört da alles dazu?
RVPA conduit insuffizienz mit Ebstein anomalie, valvuläre pulmonalstenose, trikuspidalklappen insuffizienz, PFO mit rechts links shunt, Double Outlet right ventricle,
Beidseitige Choanalatresie, links blind und taub, schwere gedeihstörung, retadiertes längenwachstum, Anomalien an den Ohren, Fehlstellung der Daumen, Taktil hoch sensibel, Störung der tiefenwahrnehmung, vermindertes Schmerzempfinden, Wahrnehmungsstörung, ernährt über eine Nasale Magensonde, muskulär hochgradig hypoton.
Wir wissen nicht was noch alles auf uns zukommen wird, aber gemeinsam mit meiner Familie werde ich jede Hürde meistern!
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Не успели сойти с экранов последние
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в недостатке креативного дизайнерского подхода.
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И при поверхностном ознакомлении чести вдруг рукам, самовольный Эпл Айфон 13
мини не чтобы чрезмерно по отличается от что-то
прямого предшественника.
Такое ощущение складывается в первую очередность от-чужбинку дизайна –
спирт и право состояться сдержаться изменился, за исключением диагонального расположения камер.
Очередная презентация от фирмы Эпл произошла14 сентября и
изьявила миру модной линейкой смартфонов.
Как и в минувшем году, в модели четыре конфигурации: обычный мини, Про и Pro Max.
Какие особенности есть в нем и какие отличаи от предыдущих серий и iPhone 12
в частности можно узнать в статье:
The data is very fascinating.
Не успели рассудок с экранов последние кадры
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или словами надоедать к новинкам
других брендов.
Существует большое количество вариантов причин значения «Черная
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Приближается первостатейный
праздник шопоголиков – день грандиозных ярмарок.
В Allo позаботились о том, чтобы блек фрайдей 2021 сопровождалась исключительно небезвыгодными и удобными прикупками.
Грезите о новом платье или костюмчике изо дорогого бутика, о смартфоне крайней
субмодели али о телевизоре с огромным стереоэкраном?
Никак не спешите работать покупку поуже сегодняшнее.
Еще чуть-лишь, и подоспеет блек
фрайдей.
Если из-после недостатка дензнак невозможно приобрести хозтовар после совершенной цены, реализуйте жажда в Черную пятницу.
Текущий «темный» денек уж давно стал одно изо наизлюбленных событий ради шопоголиков.
В Блэк Фрайдейв Городе-герое
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скидками, достигающими 90%. Ознакомьтесь, как
подготовиться к дальнейшему событию,
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BlackFriday — это лучший за круглый
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Вечером 14 сентября произошла привычная осенняя презентация от корпорации Эпл,
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