Hilfe für Madeleine
Vielen Dank an alle unsere Spender, wir haben unser Ziel erreicht. Wir konnten die volle Summe an Madeleines Familie überweisen! Vielen herzlichen Dank!
Ich heiße Madeleine, bin 3 Jahre 4 Monate jung und lebe in Oberösterreich.
Im Jänner 2019, kurz nach meinen 3. Geburtstag, erhielt ich die schreckliche Diagnose, von zwei extrem seltenen unheilbaren neurologischen Erkrankungen. Es handelt sich um eine Spätinfantile Metachromatische Leukodystrophie und um eine Charcot Marie Tooth Neuropathie. Durch einen Enzymmangel kommt es zu schweren Schädigungen und Zerstörung meiner Nervenzellen im Gehirn und meiner peripheren Nerven. Der Verlust all meiner bisherigen erlernten Funktionen wie Krabbeln, Essen, Sehen, Hören wird die Folge sein.
Die Kombinationen meiner Erkrankungen kommen bisher weltweit in keinen Datenbanken vor, daher gibt es für mich vorerst auch leider keine Therapie, und keine Heilung. Die Krankheit führt leider zum Tod.
Demnächst erhalte ich meinen ersten Rollstuhl und eine Gehhilfe, die meine fortschreitenden Gleichgewichtsprobleme lindern sollen. Daheim benötige ich dringend einen behinderten gerechten Umbau unserer im 1. Stock befindlichen Wohnung mit Treppenlift. Die Anschaffung kann bis zu 10.000€ kosten, daher benötigen wir dringend Unterstützung!
Damit mich meine Eltern zu meinen für mich wichtigen Physio-Ergo und Hippotherapien bringen können benötigen wir außerdem dringend ein größeres Auto. Daher bitte ich Sie heute um Ihre Unterstützung!
Von Herzen Danke!!
eure Madeleine
Die Familie hat erst kürzlich diese schreckliche Diagnose bekommen, und benötigt nun finanzielle Unterstützung um die Wohnung behindertengerecht umzubauen, ein größeres Rollstuhlgerechtes Auto zu kaufen und um alle nötogen Hilfsmittel anzuschaffen.
In Österreich werden Hilfsmittel und Treppenlifte teilweise finanziert, aber dennoch ist mit großen Selbstbehalten zu rechnen.
Wenn du kannst, gib eine Kleinigkeit für Madeleine und ihre Familie.
DANKE
620378 928730Merely wanna input that you have a extremely good internet web site , I enjoy the pattern it really stands out. 717052
169003 339734Most reliable human being messages, nicely toasts. are already provided gradually during the entire wedding celebration and therefore are anticipated to be really laid back, humorous and as properly as new all at once. very best man speech 198348
312333 547612Informative Site Hello guys here are some links that contains data that you could find valuable yourselves. It is Worth Checking out. 513419
341177 233852Hello there, I discovered your blog by way of Google at exactly the same time as searching for a comparable subject, your website got here up, it seems to be wonderful. Ive bookmarked it in my google bookmarks. 66431
163933 917328I enjoy your writing type, do keep on writing! Ill be back! 567932
541655 746463I saw two other comparable posts although yours was the most beneficial so a great deal 557265
439222 599796You ought to participate in a contest for probably the greatest blogs on the internet. I will recommend this web site! 841386
925247 444285I enjoyed reading this a lot I genuinely hope to read a lot more of your posts in the future, so Ive bookmarked your blog. But I couldnt just bookmark it, oh no.. When I see quality websites like this one, I like to share it with others So Ive developed a backlink to your web site (from 450414
812771 409458hey there, your site is cheap. We do thank you for work 13990
495359 483802I believe this web site contains some really great details for everyone : D. 699824
231480 658589Rattling clean internet website , thanks for this post. 582835
148913 912361I recognize there is a superb deal of spam on this site. Do you need aid cleaning them up? I could assist in between courses! 767565
228846 124188Hey, you used to write great, but the last couple of posts have been kinda boringK I miss your great writings. Past few posts are just a bit out of track! come on! 319028
11413 38467forty men and women that function with all of the services Oasis provides, and he is actually a really busy man, he 377630
259730 439167This put up is totaly unrelated to what I used to be looking google for, nonetheless it was indexed on the very first page. I guess your performing something right if Google likes you adequate to place you at the very first page of a non related search. 156901
53699 960606I like this web site so significantly, saved to favorites . 203748
666373 124491Thank you a great deal for giving everybody an extraordinarily special possiblity to check tips from here. 56322
941357 983870If running proves to be a dilemma then it could be wise to locate alternative exercises such as circuit training, weight training, swimming or cycling. 319263
743004 11675If youre needing to produce alteration in an individuals llife, during i would say the Are usually Bodyweight peeling off pounds training course are a wide path in the direction of gaining any search. la weight loss 394983
386924 925063you got a very outstanding internet site, Sword lily I identified it by way of yahoo. 275738
216807 850227Hello there! This is my first visit to your blog! We are a collection of volunteers and starting a new project in a community in the same niche. Your blog provided us valuable information to work on. You have done a extraordinary job! 557945
802353 550744Hi, Thanks for your page. I discovered your page through Bing and hope you maintain providing a lot more good articles. 660297
333250 24801Real great info can be located on internet blog . 602006
687697 860879But wanna admit that this really is extremely useful , Thanks for taking your time to write this. 593566
104816 137668The whole look of your web site is magnificent, let smartly as the content! 23594
113406 998344The Spirit with the Lord is with them that fear him. 65096
562548 731592Possible demand all types of led tourdates with some other fancy car applications. Several also offer historic packs and other requires to order take into your lending center, and for a holiday in upstate New York. ??? 162898
931503 675717Yay google is my world beater aided me to find this outstanding website! . 539826
652574 825502When visiting blogs, i typically discover a quite great content material like yours 232514
762683 92634Yay google is my king helped me to find this great internet site ! . 875082
474175 606178I just could not go away your internet site before suggesting that I extremely enjoyed the usual info a person supply to your guests? Is going to be back ceaselessly as a way to inspect new posts. 659
503777 402149Woh I enjoy your articles , saved to favorites ! . 838540
871814 466866Im so pleased to read this. This really is the kind of manual that needs to be given and not the accidental misinformation thats at the other blogs. Appreciate your sharing this greatest doc. 261736
100483 591733Magnificent beat ! I would like to apprentice whilst you amend your website, how could i subscribe for a weblog web site? The account helped me a appropriate deal. I had been a little bit acquainted of this your broadcast provided brilliant transparent concept 894096
229847 500487I also recommend HubPages itself, and Squidoo, which is related. 580792
236315 916641Its hard to discover knowledgeable folks on this subject even so you sound like you know what you are talking about! Thanks 614284
975152 308153I actually like reading by means of and I think this web site got some genuinely utilitarian stuff on it! . 102861
65867 704024If I need to say something, then absolutely nothing will stop the chatter within 111209
759053 627310There is noticeably a bundle to discover out about this. I assume you made positive good factors in options also. 331689
161116 188208If you are still on the fence: grab your favorite earphones, head down to a Best Buy and ask to plug them into a Zune then an iPod and see which 1 sounds far better to you, and which interface makes you smile a lot more. Then you will know which is right for you. 629078
962036 670489When I originally commented I clicked the -Notify me when new feedback are added- checkbox and now every time a remark is added I get four emails with exactly the same comment. Is there any approach youll be able to remove me from that service? Thanks! 895914
759024 760362Hey there! Good post! Please inform us when we will see a follow up! 565934
I do not know if it’s just me or if perhaps everyone else encountering problems with your website.
It appears like some of the written text on your posts are running off the screen. Can somebody else please provide feedback
and let me know if this is happening to them as well?
This could be a issue with my browser because I’ve
had this happen before. Appreciate it
My web site … slot Car Buying
However, the successful transformation of learning goes beyond technology alone. It requires a shift in pedagogy, encouraging educators to adopt a facilitative role, guiding students through inquiry-based learning and fostering a growth mindset.