Hilfe für Madeleine

Hilfe für Madeleine

Vielen Dank an alle unsere Spender, wir haben unser Ziel erreicht. Wir konnten die volle Summe an Madeleines Familie überweisen! Vielen herzlichen Dank!

Madeleine.pic

Ich heiße Madeleine, bin 3 Jahre 4 Monate jung und lebe in Oberösterreich.

Im Jänner 2019, kurz nach meinen 3. Geburtstag, erhielt ich die schreckliche Diagnose, von zwei extrem seltenen unheilbaren neurologischen Erkrankungen. Es handelt sich um eine Spätinfantile Metachromatische Leukodystrophie und um eine Charcot Marie Tooth Neuropathie. Durch einen Enzymmangel kommt es zu schweren Schädigungen und Zerstörung meiner Nervenzellen im Gehirn und meiner peripheren Nerven. Der Verlust all meiner bisherigen erlernten Funktionen wie Krabbeln, Essen, Sehen, Hören wird die Folge sein.

Die Kombinationen meiner Erkrankungen kommen bisher weltweit in keinen Datenbanken vor, daher gibt es für mich vorerst auch leider keine Therapie, und keine Heilung. Die Krankheit führt leider zum Tod.

Demnächst erhalte ich meinen ersten Rollstuhl und eine Gehhilfe, die meine fortschreitenden Gleichgewichtsprobleme lindern sollen. Daheim benötige ich dringend einen behinderten gerechten Umbau unserer im 1. Stock befindlichen Wohnung mit Treppenlift. Die Anschaffung kann bis zu 10.000€ kosten, daher benötigen wir dringend Unterstützung!

Damit mich meine Eltern zu meinen für mich wichtigen Physio-Ergo und Hippotherapien bringen können benötigen wir außerdem dringend ein größeres Auto. Daher bitte ich Sie heute um Ihre Unterstützung!

Von Herzen Danke!!

eure Madeleine

Die Familie hat erst kürzlich diese schreckliche Diagnose bekommen, und benötigt nun finanzielle Unterstützung um die Wohnung behindertengerecht umzubauen, ein größeres Rollstuhlgerechtes Auto zu kaufen und um alle nötogen Hilfsmittel anzuschaffen.

In Österreich werden Hilfsmittel und Treppenlifte teilweise finanziert, aber dennoch ist mit großen Selbstbehalten zu rechnen.

Wenn du kannst, gib eine Kleinigkeit für Madeleine und ihre Familie.

DANKE

 

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