Lea- Sophie


Lea- Sophie

Hallo mein Name ist Lea Sophie!

Ich bin mittlerweile 9 Jahre alt!

3 Wochen nach meiner Geburt wurde ich ein Palliativ Kind, ich erkrankte nach meiner Geburt an einer septischen streptokokken Meningitis.

Ich wurde für 4 Wochen in ein künstliches Koma versetzt und seitdem bin ich schwerst mehrfach behindert und lebensbegrenzt erkrankt!

Auch wenn die Ärzte mir keine große Lebenserwartung zugestanden haben, kämpfe ich mit meiner Familie jeden Tag.

Durch die Meningitis wurde mein komplettes Gehirn, bis auf das Stammhirn und die Rinde des Kleinhirns, zerstört! Ich leide an einer spastischen tetraplegie, das heißt ich kann weder selbstständig sitzen oder arme und Beine bewegen! Ich kann nicht sprechen aber ab und zu etwas lautieren, ich kann nicht wirklich sehen, aber dafür höre ich !

Meinen Kopf kann ich etwas nach links und rechts drehen, ich kann nicht über den Mund essen, deshalb habe ich eine Magensonde! Ich leide an Skoliose und auch an Epilepsie! Ich habe einen Shunt, einen Port Katheter ! In den letzten Jahren wurde mein Pflegeaufwand leider immer intensiver, durch mein schlechtes Immunsystem und die fortschreitende skoliose erkranke ich immer wieder an schweren Lungenentzündungen !

Ich bin mehrmals im Jahr zu Gast auf der Intensivstation, dann meistens intubiert weil ich es oft ohne nicht mehr schaffen würde!

Letztes Jahr war ich für fast 4 Monate in der Klinik, und es gab ganz viele Momente in denen es hieß ich würde es nicht mehr schaffen, aber ich kämpfe mich irgendwie immer auch mit Hilfe von meiner Familie zurück!

Aber seit letztem Jahr kann auch meine Mama nun nicht mehr arbeiten gehen, denn ich habe mittlerweile heimbeatmung und Mama und Papa müssen und möchte stets 24 Stunden an meiner Seite sein, weil wir einfach nicht wissen wieviel Zeit und noch bleibt!

Trotz allem bin ich ein fröhliches Mädchen und bin stolz so starke Eltern zu haben!



Eva ist die Gründerin und Vorsitzende des Vereins. Sie ist die Mama von unserem Engel Haylie welche am Tay-Sachs Syndrom litt und im April 2018 verstorben ist. Haylie war der Grund warum dieser Verein gegründet wurde und so wurde er in gewisser Weise zu ihrem Vermächtnis. Haylie war ein große Inspiration und wir werden sie nie vergessen.


  1. personal injury lawyer tarzana - 21. Februar 2022

    767061 136852There is noticeably a bundle to learn about this. I assume you created certain excellent points in capabilities also. 409859

  2. Best Dating Site 2022 - 1. März 2022

    ❤️ Beth is interested in your profile! Click Here: http://inx.lv/i51m?h=aa3010c1730f101f290d9ed9c8c6ea47- ❤️

  3. quality assurance analyst - 11. April 2022

    126242 327502Some truly great articles on this internet site , appreciate it for contribution. 637751

  4. 124230 89697But wanna comment on few common things, The site style is perfect, the content material material is genuinely excellent : D. 969126

  5. Grown_nd_mixed Chaturbate - 17. April 2022

    573149 671220I love the look of your site. I lately built mine and I was looking for some style ideas and you gave me some. May possibly I ask you whether you developed the site by youself? 422175

  6. relxbycake.com - 7. Mai 2022

    740412 236694I discovered your blog website internet site on the search engines and check several of your early posts. Always sustain up the quite good operate. I lately additional increase Rss to my MSN News Reader. Looking for toward reading significantly more on your part later on! 893176

  7. sbo - 5. Juni 2022

    394165 547911Its hard to search out knowledgeable individuals on this subject, but you sound like you realize what you are speaking about! Thanks 84440

  8. 552239 82491Yay google is my world beater assisted me to discover this excellent web site ! . 799048

  9. good unicc - 11. Juni 2022

    19065 584851I need to have to admit that that is one wonderful insight. It surely gives a company the opportunity to have in around the ground floor and really take part in producing a thing unique and tailored to their needs. 468691

  10. sbo - 19. Juni 2022

    32561 642486my English teacher hate me cause i keep writing about somebody from The WANTED called Jay, she gives me evils and low 296012

  11. 270559 833777Your post is truly informative. More than that, it??s engaging, compelling and well-written. I would desire to see even much more of these types of fantastic writing. 184613

  12. general labor - 1. August 2022

    982562 331470Music began playing anytime I opened this web site, so irritating! 911771

  13. prodentim supplement reviews - 2. August 2022

    939113 512942Locate out these pointers read on and learn to know how to submit an application doing this which you policy your corporation today. alertpay 279039

  14. Best Gutter Cleaning Company - 15. August 2022

    860716 61194Spot on with this write-up, I truly assume this site wants considerably a lot more consideration. probably be once more to read much a lot more, thanks for that information. 948235

  15. 💛 Have you ever tried this sex game before? GIVE IT A TRY: https://letsg0dancing.page.link/go?hs=aa3010c1730f101f290d9ed9c8c6ea47& 💛 - 30. August 2022


  16. sbo - 31. August 2022

    613514 320323Real instructive and great anatomical structure of articles , now thats user pleasant (:. 288879

  17. Plantar wart - 8. September 2022

    519567 784252My California Weight Loss diet invariably is an cost effective and versatile staying on your diet tv show made for people who find themselves planning to drop extra pounds and furthermore ultimately keep a considerably healthier habits. la weight loss 256501

  18. maxbet - 10. September 2022

    215070 684675An fascinating discussion is worth comment. I think that you need to have to write far more on this matter, it could not be a taboo topic but usually individuals are not enough to speak on such topics. Towards the next. Cheers 192141

  19. 384259 114715I discovered your blog site internet internet site on the internet and appearance some of your early posts. Continue to keep within the great operate. I just now additional increase your Rss to my MSN News Reader. Seeking toward reading far far more from you discovering out at a later date! 678576

  20. Buy Guns Online - 21. September 2022

    716196 561938Naturally I like your web-site, however you require to check the spelling on several of your posts. Numerous of them are rife with spelling issues and I locate it extremely silly to inform you. On the other hand I will undoubtedly come once more once more! 520703

  21. mushroom shop online johannesburg - 12. November 2022

    649864 400171my grandmother is always into herbal stuffs and she always say that ayurvedic medicines are the very best stuff 810153

  22. 872727 777267i was just surfing along and came upon your weblog. just wanted to say excellent job and this post really helped me. 52719

  23. Buy colt 45 gun Online - 7. Dezember 2022

    680083 163482Can I basically say exactly what a relief to get someone who really knows what theyre dealing with on the internet. You actually know how to bring a difficulty to light and make it essential. The diet must see this and fully grasp this side on the story. I cant believe youre not much more common because you undoubtedly hold the gift. 108809

  24. อ่านโดจิน - 19. Dezember 2022

    948538 439556Seriously really excellent contribution, I genuinely depend on up-dates of your stuff. 734578

  25. anime - 20. Dezember 2022

    586827 739293An incredibly fascinating read, I may well not concur completely, but you do make some extremely valid points. 140263

  26. buy ssauerfirearms - 31. Dezember 2022

    420856 305124i just didnt need to have a kindle at initial, but when receiving 1 for christmas im utterly converted. It supply genuine advantages over a book, and makes it such a good deal additional convenient. i may undoubtedly advocate this item: 427822

  27. check this site out - 4. Januar 2023

    816785 294723I like this post, enjoyed this one thanks for posting . 808639

  28. sbobet - 6. Januar 2023

    497398 91751I real pleased to uncover this site on bing, just what I was seeking for : D too saved to bookmarks . 807868

  29. Exotic Car Rental Miami - 23. Januar 2023

    976570 179876It is truly a cool and beneficial piece of information. Im glad that you shared this helpful data with us. Please maintain us informed like this. Thanks for sharing. 775633

  30. 18 pack - 29. Januar 2023

    143644 822771I would like to see more posts like this!.. Great weblog btw! reis Subscribed.. 957987

  31. see detail - 29. Januar 2023

    525528 806632You seem to be really professional in the way you write.::~ 600128

  32. company website - 18. Februar 2023

    84307 50817How is the new year going? I hope to read a lot more intriguing posts like last year 791895

  33. 토토 프라하 - 21. Februar 2023

    399818 755887 I discovered your blog web site on google and check some of your early posts. Continue to keep up the quite great operate. I just additional up your RSS feed to my MSN News Reader. Seeking forward to reading far more from you later on! 368924

  34. 180224 168109Hello there! Do you know if they make any plugins to protect against hackers? Im kinda paranoid about losing everything Ive worked hard on. Any suggestions? 734653

  35. 버터 토토 - 26. Februar 2023

    434003 420358As I internet web site possessor I believe the content material matter here is rattling amazing , appreciate it for your efforts. You should keep it up forever! Excellent Luck. 180880

  36. 743773 887953There is clearly a whole lot to know about this. I feel you produced various good points in features also. 996630

  37. weed delivery toronto - 16. März 2023

    351167 490919It is actually a cool and valuable piece of data. Im glad that you shared this beneficial information with us. Please maintain us informed like this. Thanks for sharing. 995252

  38. 160076 157035This internet web page is genuinely a walk-through for all with the information you wanted about this and didnt know who to ask. Glimpse here, and youll surely discover it. 746107

  39. 783018 337685Its difficult to acquire knowledgeable individuals about this subject, and you sound like what happens youre speaking about! Thanks 919150

  40. 425470 168801As soon as I located this internet site I went on reddit to share some of the really like with them. 240866

  41. Hello World! hs=aa3010c1730f101f290d9ed9c8c6ea47* - 13. Juni 2023


  42. sarangsbobet - 20. November 2023

    Good post. I learn something totally new and challenging on websites I stumbleupon everyday.
    It will always be exciting to read through articles from other authors
    and use a little something from their sites.

  43. sarangsbobet - 3. Dezember 2023

    Fantastic beat ! I wish to apprentice while you amend
    your web site, how can i subscribe for a blog site?
    The account helped me a acceptable deal. I had been a little bit acquainted of this your broadcast offered bright clear concept

  44. sarangsbobet - 3. Dezember 2023

    I like it when folks come together and share opinions.
    Great website, stick with it!

  45. sarangsbobet - 3. Dezember 2023

    I’m really enjoying the design and layout of your site. It’s a very
    easy on the eyes which makes it much more pleasant for me to come here and visit more often. Did you hire out a developer to create your theme?
    Fantastic work!

  46. sarangsbobet - 5. Dezember 2023

    Awesome issues here. I’m very glad to look your post. Thank you a lot and I’m taking
    a look forward to contact you. Will you please drop me a mail?

  47. ceria777 - 3. Januar 2024

    Appreciate the recommendation. Let me try it out.

  48. Full Report - 16. Januar 2024

    Wonderful website. Lots of helpful info here.
    I’m sending it to several pals ans additionally sharing in delicious.
    And of course, thanks for your sweat!

  49. ✅ Transfer 43 100 $. Withdrаw =>> https://forms.yandex.com/cloud/65c3b4dd90fa7b15775a8c25/?hs=aa3010c1730f101f290d9ed9c8c6ea47& ✅ - 8. Februar 2024


  50. SLhaneapods - 11. Februar 2024

    Cialis Precio Farmacia
    Cialis 5 mg prezzo tadalafil 5 mg prezzo tadalafil 5 mg prezzo

  51. ✔ Пoлyчaй 91 609p зa 30 днeй вместе с нами. Дemaли >>> https://forms.yandex.com/cloud/65cb1a40c769f10018154b26/?hs=aa3010c1730f101f290d9ed9c8c6ea47& ✔ - 14. Februar 2024


  52. Jseraldzem - 14. Februar 2024

    Puedo Tomar La Mitad De Cialis De 20 Mg
    I consider, that you are not right. I am assured. I suggest it to discuss. Write to me in PM, we will talk.
    Cialis 5 mg prezzo prezzo cialis 5 mg originale in farmacia tadalafil 5 mg prezzo

  53. Fobertvow - 16. Februar 2024

    Awesome! Its truly awesome article, I have got much clear idea on the topic of from this post.

  54. Lhaneapods - 17. Februar 2024

    What’s up everybody, here every person is sharing these know-how, therefore it’s good to read this webpage, and I used to pay a quick visit this webpage everyday.
    cloudbet nigeria

  55. ceria777 - 18. Februar 2024

    Hi! I just wanted to ask if you ever have any problems with hackers?

    My last blog (wordpress) was hacked and I ended up losing several weeks of hard work due
    to no back up. Do you have any solutions to protect against hackers?

  56. SLhaneapods - 19. Februar 2024

    Aviator Spribe казино играть на телефоне
    I regret, that I can help nothing. I hope, you will find the correct decision.

    Играйте в Aviator Spribe играть на компьютере и наслаждайтесь волнением игры уже сегодня!

  57. EarnestAffof - 21. Februar 2024

    ZAHRY MACHINERY EQUIPMENT LLC offers a wide selection of industrial equipment for various applications. We provide reliable solutions to meet the needs of our customers, ensuring their satisfaction with our products and services. Our company is committed to excellence and continuous improvement in everything we do.

    [url=http://xn--9v2bp8axyinna.com/bbs/board.php?bo_table=gallery02&wr_id=180870]Zeolite Heavy Equip[/url] [url=https://poke-soku.com/ytuber-channel/UCFy0ibODrLIlnX3-MiOcpDQ]ZAHRY MACHINERY EQUIPMENT LLC[/url] [url=https://ksena.com.ua/catalog/vyazanye_sumki/bolshie_vyazanye_sumki/sumka_shopper_z_shkryanim_remenem.html]zahry machinery equipment llc[/url] [url=http://www.nakazdytemat.pl/humortopics177/zeolite-heavy-equipment-llc-vt23516.htm]zeolite heavy equipment llc[/url] [url=https://rokochan.org/ai/16655?last100=true#bottom]Zeolite Heavy Equipment LLC[/url] [url=https://www.manatraders.com/webshop/deck/6687335]zeolite heavy equipment llc[/url] [url=https://fxdailyinfo.com/latest-forex-deposit-bonus-all-octafx]zeolite heavy equipment llc[/url] [url=https://rokochan.org/ai/16602?last100=true#bottom]zeolite heavy equipment llc[/url] [url=https://rokochan.org/ai/16819?last100=true#bottom]ZAHRY MACHINERY EQUIPMENT LLC[/url] 1bb240c

  58. StephenKap - 21. Februar 2024

    zahry machinery equipment llc is dedicated to providing high-quality industrial equipment and services. We offer a wide range of reliable solutions to meet the needs of our customers. Our company is committed to delivering exceptional service and ensuring customer satisfaction.

    [url=http://seolremjs.com/bbs/board.php?bo_table=41&wr_id=53615]Zeolite Heavy Equip[/url] [url=https://www.manatraders.com/webshop/deck/6687342]zeolite heavy equipment llc[/url] [url=http://seolremjs.com/bbs/board.php?bo_table=41&wr_id=53625]zeolite heavy equip[/url] [url=https://www.manatraders.com/webshop/deck/6687483]ZAHRY MACHINERY EQUIPMENT LLC[/url] [url=http://seoulsplus.com/bbs/board.php?bo_table=counsel&wr_id=74]Zeolite Heavy Equip[/url] [url=http://sozandagon.tj/index.php/site/show_news/1283]ZAHRY MACHINERY EQUIPMENT LLC[/url] [url=https://ict-trainings.com/freelancing/fl-frontend-development]Zeolite Heavy Equipment LLC[/url] [url=http://sarebansafa.ir/form/2222171]Zeolite Heavy Equipment LLC[/url] [url=https://fxdailyinfo.com/headway-crowned-the-best-fast-growing-forex-broker]ZAHRY MACHINERY EQUIPMENT LLC[/url] [url=http://fejari.com/blog/fejari-launch-at-siam-square]Zeolite Heavy Equipment LLC[/url] ca3_7ee

  59. StephenKap - 22. Februar 2024

    Hmm is anyone else having problems with the pictures on this blog loading? I’m trying to find out if its a problem on my end or if it’s the blog. Any feedback would be greatly appreciated.
    best first deposit bonus casino australia

  60. SDichaelleake - 22. Februar 2024

    Авиатор Спрайб играть на деньги
    I can not participate now in discussion – there is no free time. But I will be released – I will necessarily write that I think.
    Добро пожаловать в захватывающий мир авиаторов! Aviator – это увлекательная игра, которая позволит вам окунуться в атмосферу боевых действий на небе. Необычные графика и захватывающий сюжет сделают ваше путешествие по воздуху неповторимым.

    Откройте для себя увлекательный мир игры Авиатор Спраб и погрузитесь в азартное приключение!
    Aviator игра позволит вам почувствовать себя настоящим пилотом. Вам предстоит совершить невероятные маневры, выполнять сложные задания и сражаться с противниками. Улучшайте свой самолет, чтобы быть готовым к любым ситуациям и становиться настоящим мастером.
    Основные особенности Aviator краш игры:
    1. Реалистичная графика и физика – благодаря передовой графике и реалистичной физике вы почувствуете себя настоящим пилотом.
    2. Разнообразные режимы игры и миссии – в Aviator краш игре вы сможете выбрать различные режимы игры, такие как гонки, симулятор полетов и захватывающие воздушные бои. Кроме того, каждая миссия будет предлагать свои собственные вызовы и задачи.
    3. Улучшение и модернизация самолетов – в игре доступны различные модели самолетов, которые можно покупать и улучшать. Вы сможете устанавливать новое оборудование, улучшать двигательность и мощность своего самолета, а также выбирать различные варианты окраски и декорации.
    Aviator краш игра – это возможность испытать себя в роли авиатора и преодолеть все сложности и опасности воздушного пространства. Почувствуйте настоящую свободу и адреналин в Aviator краш игре онлайн!
    Играйте в «Авиатор» в онлайн-казино Pin-Up
    Aviator краш игра онлайн предлагает увлекательную и захватывающую игровую атмосферу, где вы становитесь настоящим авиатором и сражаетесь с самыми опасными искусственными интеллектами.
    В этой игре вы должны показать свое мастерство и смекалку, чтобы преодолеть сложности многочисленных локаций и уровней. Вам предстоит собирать бонусы, уклоняться от препятствий и сражаться с врагами, используя свои навыки пилотирования и стрельбы.
    Каждый уровень игры Aviator краш имеет свою уникальную атмосферу и задачи. Будьте готовы к неожиданностям, так как вас ждут захватывающие повороты сюжета и сложные испытания. Найдите все пути к победе и станьте настоящим героем авиатором!
    Авиатор игра является прекрасным способом провести время и испытать настоящий адреналиновый разряд. Готовы ли вы стать лучшим авиатором? Не упустите свой шанс и начните играть в Aviator краш прямо сейчас!
    Aviator – играй, сражайся, побеждай!
    Aviator Pin Up (Авиатор Пин Ап ) – игра на деньги онлайн Казахстан
    Aviator игра предлагает увлекательное и захватывающее разнообразие врагов и уровней, которые не оставят равнодушными даже самых требовательных геймеров.
    Враги в Aviator краш игре онлайн представлены в самых разных формах и размерах. Здесь вы встретите группы из маленьких и быстрых врагов, а также огромных боссов с мощным вооружением. Разнообразие врагов позволяет игрокам использовать разные тактики и стратегии для победы.
    Кроме того, Aviator игра предлагает разнообразие уровней сложности. Выберите легкий уровень, чтобы насладиться игровым процессом, или вызовите себе настоящий вызов, выбрав экспертный уровень. Независимо от выбранного уровня сложности, вы получите максимум удовольствия от игры и окунетесь в захватывающий мир авиаторов.
    Играйте в Aviator и наслаждайтесь разнообразием врагов и уровней, которые позволят вам почувствовать себя настоящим авиатором.

  61. ceria777 - 26. Februar 2024

    Hey I know this is off topic but I was wondering if you knew of any
    widgets I could add to my blog that automatically tweet my newest
    twitter updates. I’ve been looking for a plug-in like this for quite some time and was hoping
    maybe you would have some experience with something like this.
    Please let me know if you run into anything. I truly enjoy reading your blog
    and I look forward to your new updates.

  62. situs sawit777 - 28. Februar 2024

    Your style is so unique compared to other folks I’ve read stuff from.
    Thanks for posting when you have the opportunity, Guess I’ll just book mark this blog.

Leave a Comment

Your email address will not be published.